Wednesday, November 27, 2013

Jim Brickman: America's Romantic Piano Master - The Interview

 
Jim Brickman is a two-time Grammy nominated songwriter and pianist with six gold and platinum
albums to his credit. He has worked with some of the most successful music artists of our time
and he hosts a weekly radio program, Your Weekend with Jim Brickman. He is currently on tour with his annual Christmas show which features music from his latest studio album, The Magic of Christmas.   

The 17th annual Holiday Tour is taking you through much of the Midwest. You will be in the Chicago area on November 30.  What's the best aspect of the annual tour?

Besides the music, the audience gets a feeling of family. They are part of the celebration, it’s not like they just sit and enjoy the show.  They come away with a very festive, yet intimate experience.
What are your favorite Christmas songs? Carols?

I love the hymns and old carols, because they were actually written by the masters. I love more modern songs that really create a visual experience, like the lyrics ”Chestnuts Roasting on an Open Fire” and “ I’m Dreaming of a White Christmas” and of course, my songs!
Do you think we could ever get to a point where "newer" songs become classics like the ones we have been listening to for generations and in some cases hundreds of years?

Of course!  These songs are playing for a whole new generation of listeners who are starting their own traditions.  New songs as well as old classics will be associated with the memories they are making.
Do you have a couple of unique family holiday traditions?

Well, I’m on tour throughout the holiday season, so the singers and crew become one big family.  We decorate the tour bus with Christmas lights and go out for a nice dinner before we break for Christmas.  Our unique tradition would be the “Secret Santa” gift exchange.  We pick names at the beginning of the tour and try to fit in some shopping in the cities along the route.  The gifts are often quite original!
Working with Johnny Mathis and Sandi Patty must be beyond rewarding.  One is a legendary singer who has been active in the music industry for over 50 years and the other is one of the premiere Christian vocalists of all time. Share the experience of working with them.
On the current album, "The Magic of Christmas," Johnny Mathis, Sandi Patty and Megan Hilty brought a sensibility to the music that was unique to each of them.  Johnny’s voice and legendary sound gave “Sending You A Little Christmas” a new and inimitable message.  I found him so interesting to work with. He was very eager to talk about the significance of the song and his interpretation.  The final result is pure Johnny Mathis and I am so pleased.   Sandi and Megan each gave beautiful performances that added magic to the collection.
Your 20th anniversary is being kicked off in early January, 2014. What are some of the most notable of lessons learned from your career to this point?

I guess I’m just really hands on and have remained involved in every aspect of my career. Even after 20 years, I can’t let go of that.  I’ve always relied on myself to initiate ideas both musically and in business.  I am still surrounded by good friends who have worked with me from the start.  
You recorded Sending You A Little Christmas at Capitol records. I walked through the building a few years ago and was overwhelmed at every corner. Frank Sinatra. Dean Martin. The Beach Boys. The Beatles. Peggy Lee. Bob Seger and so many others at one time or another recorded for Capitol. Tell us about that experience.  Johnny Mercer's storied founding and history is worth discussing all alone.
If the walls could talk . . .  I walked in and thought “Wow, I’m recording my music in this studio that I’ve seen in pictures ever since I can remember.”   I could just feel the presence of the “greats” who recorded there and was hoping some of their brilliance would rub off on me.  It was truly a “pinch me” moment.
You have worked with a wide array of gifted musical artists, including Martina McBride, Michael W. Smith, Donny Osmond, Kenny Loggins and Lady Antebellum.  What leads you to working with another artist? What's the inspiration usually for the collaboration?

I’ve pursued artists whose work and style I admired but were not known for singing adult contemporary ballads.  I thought that combining musical styles would be an interesting mix.  My intention was to create something new style-wise bringing a different slant to the traditional Adult Contemporary ballad.  For instance, Martina McBride was a relatively new country artist.  I liked her sound and invited her to try “Valentine.”  The combination was successful and I’ve continued to collaborate and use Adult Contemporary, Christian, Country and some ‘soon-to-be discovered” artists.
Who is the dream musical partnership for you?  Living and deceased?
Plain and simple, I would love to hear Karen Carpenter’s incredible voice singing my songs.    
 
You've written commercial ad music for some major companies and organizations.  Do you still write commercial ads?

No, but once in a while I get notification that my music has been used for a commercial or on an NFL tribute.

How did you get into radio? What motivated that decision?
I’m a naturally curious person. I was being interviewed so many times I thought it would be cool to ask my own questions.  So, when the opportunity was presented to me to host a music show, I jumped at it! 
PBS. Without PBS we would be lacking almost all music on television. Their recent Great Performances celebrating their 40th anniversary was wonderful. How did the connection happen for you? Are you working on something with PBS now? 

I’m a strong supporter of PBS and I'm happy to be associated with them over the years. After my success with “Rocket To The Moon” and “Valentine,” working with PBS was the perfect combination of support for them and reaching new audiences.  Earlier this year we filmed Jim Brickman’s Celebration of the 70’s which will be shown on PBS stations in 2014.   

Who are your favorite musical artists of all-time?
The Carpenters, Barbra Streisand, Elton John, Carole King,
Which artists influenced you the most?
Peter Allen, Burt Bacharach and Hal David as writers.
Best pianist of all-time?
George Gershwin was an incredible pianist, but an equally talented writer.


Jim, thanks so much for spending a bit of your time with Chicago and Then Some. Please visit his site to check out his tour schedule. www.jimbrickman.com  Merry Christmas!
 
 
Copyright Chicago and Then Some 2013

 

 

Saturday, September 21, 2013

Concert Review: Eagles at United Center, Chicago - September 20, 2013

"Seems like a dream now, it was so long ago."


The Eagles are the definitive American rock band. Outside of the Beach Boys, no other American act even comes close to matching the ups, the downs, the good, the bad, the spot on music of life quite like the Eagles.

They did their first of two nights (they will appear for their second night in Chicago on October 19 at  the All-State Arena) in Chicago at the United Center on Friday, September 20 in front of a sold-out crowd of hard-core fans; and a few nominal fans.

Don Henley and Glenn Frey are two gifted composers/lyricists. They took the stage in silence and it went from you could hear a pin drop to a deafening roar of approval. The lovers of the timeless music catalog known as the Eagles were beyond content. They opened the show with two little heard ballads from their first two albums. Train Leaves Here This Morning is off the 1972 debut album, Eagles. That lovely piece of music segues into Saturday Night off of the Desperado album. No band defines musicality better than the Eagles. They were and are gifted songwriters, musicians, singers and clearly, the best harmonizers in all of recorded music. Lest one think hyperbole is being used. It's not.

Original member, Bernie Leadon rejoins the Eagles on this, Their History of the Eagles tour. Even though we are being led to believe and I believe it is true, that this will be their last tour as Eagles, it is wonderful to have him back.  He plays the mandolin on Saturday Night and it is beyond a welcomed moment in life itself. The only missing element is Randy Meisner. Randy Meisner's ill health has prevented him from taking part in this retrospective of a career. Glenn Frey did say from the stage that Randy was recovering. Unfortunately, his nuanced and beautiful presence on the stage will not be felt during this tour.

The acoustic open to the show with the earliest of Eagles songs is beautifully done. No theatrics. It's the music. Period.

They play through a near mind-numbing series of hit songs. Peaceful Easy Feeling, Witchy Woman, Tequila Sunrise, Best of My Love, Already Gone and One of These Nights. They launched into a scorchingly subtle, beautifully poetic and hauntingly cow jumped over the moon moment with their non-Randy Meisner version of  Take It To The Limit. Randy Meisner is obviously not there to craft and mold the moment that only he can take to the limit, but the memories of the original recorded version are so deeply rooted in the mindset of the lover of the music that it will no doubt never fade away during the earthly life of the fan. The current stage version of Witchy Woman is newly arranged with a driving downbeat. It took on a life of its own. Bernie Leadon, in his intro said he wrote the song with Don Henley and then got a laugh out loud moment with "no one in the band ever dated anyone like this woman." One of them probably did.

More hits - Lyin' Eyes, New Kid in Town, Life in the Fast Lane, In The City, Heartache Tonight and then they rolled us into a post hypnotic trance on their encore songs, including Hotel California, Take It Easy and they move quietly into the sunset with the most gorgeous and simple take on Desperado. They play it straight with the original arrangements of many of these songs, but they mess around (in a good way) with Heartache Tonight. Glenn Frey admits he loved what the Beach Boys did with Barbara Ann. A group of musicians having fun with their guitars talking to one another. There were no heartaches last night.

Lots of humor and talking on this tour. I've seen them several times over the years and they talked more last night than they have in their entire career on the stage. Frey had some good moments with his Lyin' Eyes tune dedicated to his ex-wife. I won't give you the punch line.

Those Shoes was so spot on I literally could have closed my eyes and thought my turntable was playing my Long Run copy.

Joe Walsh adds a tremendous amount of humor and rock to the evening. His superb artistry with the guitar lends itself wisely to the band. His inclusion in the band may be one of the most brilliant decisions Glenn Frey ever made. By the way, he looks great. Talk about aging well. Joe's highlight moment was Rocky Mountain Way. You get a Colorado backdrop to ease you while showcasing his still remarkable set of gifts.

Timothy B. Schmit off of a bout with cancer is in top form. He drives home the appeal of the country rock roots and he delivers on the hard driving rock songs. TBS (Glenn Frey called him TBS, so let's go with it) pulls out the harmonica on Doolin' Dalton.

Don Henley and Glenn Frey still offer supremely worthwhile lead vocals throughout the multiple sets, although, keep in mind they are 66 and 65 years of age respectively. No, they don't sing like they used to, but they are better than anyone else out there. Their voices have to strain a bit and they are no longer effortless voices. They are two of the finest vocalists, phrasers and interpreters of their own music in the last sixty years of recorded music. Song for song, there is no act quite like them. The Beatles may reign with range and depth, but for sheer joy, solace and peace in rock/pop music I would rather have the catalog of the Eagles on the desert island, wherever that may be. On a cold  day I'm pulling out On the Border

The only song missing - Seven Bridges Road. This song defines the pure genius of their harmony abilities. They've sung it since the 1970's in their live shows and they use it to open their History of the Eagles documentary. I don't know why it's not on their set list, but here's hoping they add it back to the show.

A couple of verbal hiccups. Glenn Frey said his hometown of Detroit was like Chicago with more garbage. Clearly, he hasn't read a great deal of news lately, but Don Henley's verbal faux pas of referring to Linda Ronstadt as a smart "girl" was a bit much. "Girl?" She's 67 years old; and then after he called her a smart girl he mentioned she wrote her autobiography by herself. Patronizing to boot. They are clearly forgiven, but they may want to check themselves on the next go-round.

I don't say this lightly, but in my life I have been comforted deeply by my faith, my immediate family and by the music that has so stirred my emotions. The Eagles have been with me on my own personal journey since that lofty late spring day when I first heard them back in May, 1972. I sincerely can't imagine not having them as my backdrop.

I shared this evening with my two surviving siblings. I also had two elementary school friends join in. The evening was like a walk into my youth. Amen to that! In the end, it was much more than a walk backwards. It was a walk into my very present life and ultimately, a walk into the future. The music of the Eagles will be with me until I take my own last breath.

Oh yeah, "the bluebird was high on the wind."

This show is something to behold. May they have the wind be at their back as they loiter effortlessly through the balance of their days.

Copyright Chicago and Then Some 2013

Sunday, September 15, 2013

Day Trip - In and Around Chicago - To Oregon, Illinois

Try telling someone you are going to Oregon and they'll look at you and ask - "I thought you said we'd get together for pizza later" or "which airline are you flying on?"

Visiting Oregon, Illinois is a nice way to spend a day out of town. Now that fall is setting in, you can take advantage of a brisk fall morning and stare at the hawks gliding above as you peer into the skies. The treelines will soon be carpets of fall foliage lounging throughout the heart of the Northern Illinois landscape.

There is a wonderful authenticity to the outdoors. Trees are beautiful with large swaths of color dotting the horizons every which way you look. The skies are dripping gold, orange, red, burgundy and assorted other shades of bountiful color. There is a tremendous richness to the season we are approaching, but taking a trek to Oregon is lovely at any given point in the calendar year.

If you are coming out of the city center you can reach Oregon in 1:45. Seriously, get yourself onto the I-88 corridor and you will have yourself a lovely scenic drive. We took I-88 to Route 39, but you can drive along surface streets the entire way if you choose to spend a bit more time resting and relaxing on the drive.

Once in Oregon, you have to head to the 48 foot tall statue erected in honor of the Sauk chief, Black Hawk.  The statue has absolutely nothing to do with the Chicago Blackhawks hockey team outside of the name. Having said that, this would be a unique way to share a bit of fun with some of your fellow Blackhawks fans.

Black Hawk Statue


The statue stands proudly along the gorgeous Rock River in the Lowden State Park. Think, lots and lots and lots of trees. There are some paths to walk and the State Park is surrounded by several city parks that offer the comforts of rest and relaxation.

The statue is listed repeatedly as just "the statue," so don't look for Blackhawk signs anywhere. Some people will refer to the statue as the eternal Indian statue.  The statue was dedicated on July 1, 1911 and it is part of the U.S. National Register of Historic Places.  Lorado Taft was the sculptor.

The town is small, but we let the local Dairy Queen source us with calcium and we walked along the town's blocks and witnessed a gigantic war memorial and a non-descript tribute memorial to the nation's 35th President, John F. Kennedy.

Take your car, bring your bikes and go to Oregon, Illinois for a memorable day trip.  The town is easily accessible from all points whether you are coming in from Chicago, Southern Wisconsin, Southeastern Minnesota, Iowa or the Illinois towns that surround the area.

Ogle County is one of the smaller counties in the state of Illinois, but the town of Oregon offers up some amazing architectural specimens, so enjoy the art of the buildings.

This is a pleasant way to spend a leisurely Saturday or Sunday.

Copyright Chicago and Then Some 2013

Friday, August 9, 2013

Restaurant Review: Paladar in Chicago's Logan Square

 
 
On my summer food journey I was directed into the direction of a true find and yes, first impressions in the world of restaurants mean almost everything. Paladar Cuban Restaurant offers superb food for both the sophisticated diner and the not so sophisticated, which is a healthy balance for sustaining a successful restaurant. Our evening at Paladar began with the Plantain chips with garlic and guacamole. Warm bread was also served upfront before the entrees made their appearance. The bread is served with a couple of different flavored butters and they shout out - delicious! The appetizers are wonderful, but definitely devour the flavors of Cuba Platter, which is enough for a party of four to six. Excellent all the way around on this one. Scrumptious! 

The Tilapia with Spanish rice and black beans, the Stuffed Poblano Pepper and the Garbanzos are all excellent and worth the trip to Paladar alone. The meat and seafood dishes are plentiful, but vegetarians and even vegans will be taken aback with the multiple number of options the customer is given. 

Paladar has outdoor dining and even though the restaurant is located off of a busy street you are in a private enough location that no one has to talk above the din of street traffic. Another plus: parking was shockingly easy. The service was outstanding and I don’t say that loosely. Just outstanding. 

The indoor location is delightfully designed with personal life treasures hanging on the walls and a sentimental plate wall that features a long-held tradition of gifting with a plate. Bring the owner a plate and maybe you will leave your mark on the restaurant's wall.


 
The Havana bar in the back looks welcoming enough that Ernest Hemingway himself most assuredly would have enjoyed a hit of a mojito. Paladar offers a wide range of mojitos, margaritas and various rum options.   

 

Paladar is cozy and comfortable. The indoor dining room, the outdoor patio and the Havana bar are all welcoming. If you want cozy and romantic you will get  that; and if you are hanging out with friends you will enjoy the tastes of the restaurant while enjoying good conversation. 

The owner was born in Cuba, but came to the United States at the age of six. He has taken Paladar to a high level in Cuban dining. The concept of the restaurant was based on the paladares of Cuba. They were home-grown restaurants since official restaurants weren’t allowed in the Caribbean nation.  

Paladar is at the high end of Cuban meals in the Midwest. Time seemed to stop here while we embedded ourselves in some delicious food. First-rate food and good-natured service = excellence.

Logan Square has become one of the hippest neighborhoods in the city and I don’t mean hip in the sense of trendy, even though it is now trendy. It’s hip, because some talented chefs and restaurateurs are doing business in this area. Another huge asset to Logan Square - the walking areas are memorable. Taking a walk down the boulevard is a gentle nudge in the entertaining yourself department while you get some essential exercise.

Don't miss Paladar! Oh-and the prices are beyond reasonable.

 
2252 North Western
Chicago

After 6pm there is free parking at the PNC Bank parking lot, but you need to get a pass from the restaurant.


Copyright Chicago and Then Some 2013







 

Sunday, August 4, 2013

Sweet Love - The Joys, The Fears and The Realities of Life with Chicago's Top Advocate For Those With Down Syndrome


Margie and Colin
The Loving Hand of a Mom

I wasn't at the job for more than a couple of months when they hired a young man with Down Syndrome to be our "copy guy" at ABC. I was impressed that the ABC Television Network would work with the state of California on a program that would position Bobby (name has been changed to protect his privacy) as being part of the ABC team. I got to know a bit about Bobby over the years  and I knew he had a loving family, a girlfriend, he took two modes of transportation to get to the office and he was involved in Special Olympics and Best Buddies. Bobby was a hard working American and when he won medals at Special Olympics games he wore them proudly into the office.

During my tenure with ABC, I had flown to Minnesota to work on a primetime summer television special about the Special Olympics. I met Prince and Warren Beatty on that special shoot, but the far more intriguing people were the athletes involved in Special Olympics. No offense to either Prince or Warren Beatty.

I was living 1745 miles as the crow flies from Chicago, but I had kept in touch with Margie Doyle.  Margie Doyle is one of those people that had it made. She loved her family; and she had been encouraged throughout her life by good friendships. She was a loving daughter to her parents, Jim and Rita; and an equally loving wife to Sean. She was mom to John, Patrick, Tara and Brian. The Doyle's were fortunate to be living the good life and they knew it. Like everyone else on planet earth, their lives included its share of ups and downs. Sean, having been diagnosed with cancer as a young father made his family realize that life came with times of joy and celebration as well as fear and intimidation.

At the age of 45, Margie and Sean found out they were to be parents for a fifth time. The Doyle’s learned early on in the pregnancy that their unborn son had Down Syndrome. Margie was in her eleventh week of pregnancy. It was a life altering moment. They both came to realize that although they were parents to four other children already, they were now in frighteningly unfamiliar territory. In June, 2008, Colin James Doyle entered the world and the Doyle family was now complete. Colin was born with Down Syndrome. Life had been altered, but joy and intimidation often go hand in hand.
 
Margie Doyle is a relentless lover of life and a tireless fundraiser. Long before her own son arrived in the world, Margie was selflessly giving of her time and talent on behalf of Cystic Fibrosis.
 
Chicago is a hub of major fundraising and Funding Futures provides individuals with Down Syndrome opportunities and independence by supplementing cognitive research for the Down Syndrome Research and Treatment Foundation.
Margie sat down with me over a lovely summertime outdoor lunch and we talked about the upcoming fundraiser, life, family, change and dreams.

Judith: What went through your mind as you were about to embark on a different type of pregnancy, particularly as you were at the time slightly older than the average mom?

Margie: Joy, fear of the unknown, and God went through my mind. I had been blessed with four other children, so I knew full well what a tremendous gift a new life was. My age didn’t concern me. I new there would be higher risks, but I felt physically fit to carry on. Having witnessed the faith of my parents and extended family, and the difficult times in their life that they carried on through their faith, I was confident in how my faith would see me through it all.  

Judith: You were active in raising funds for Cystic Fibrosis prior to the birth of Colin, so how did you use those skills and apply them to the world of Down Syndrome Research?

Margie: Ironically, it was a smooth transition and it happened before Colin was even born. Having been involved with Cystic Fibrosis during the decoding of the genome and witnessing the excitement with the research community, because of the information they now had, I hoped and prayed the same for individuals with Down Syndrome, especially my unborn son. I certainly don’t know much in the area of science, but I knew Cystic Fibrosis was a chromosomal anomaly and I knew Down Syndrome was too. With that wee bit of knowledge I began an Internet search looking and hoping to find research being done for individuals with Down Syndrome to help improve cognition. I immediately followed DSRTF and became more and more involved. I attempted to speak to doctors, parents and therapists about this exciting research, only to learn people were stunned. No one knew or heard of this within my circles. This research needed support. Colin needed support and thankfully I had some background to begin to provide the support.

Judith: Tell us a bit about your work with Down Syndrome Research and Treatment Foundation (DSRTF)?

Margie: I've been blessed with a wonderful family and some good friends. With such a foundation in my life I was able to reach out for support and ask others to help me raise awareness and funds to support research; and of course my friends, rose to the occasion. Many people assist by generously supporting the annual event we host in Chicago, Funding Futures. Others assist via introductions to colleagues, other families, or persons that can assist in raising awareness in the media. This support has allowed me to hold forums, speaking engagements, events to raise money and every aspect is helping us to further educate and fund the ongoing research.

Judith: Colin’s day is not a typical one for a five year old. I know that his therapies alone add to the day to day. He has physical therapy, occupational therapy, speech therapy and a great deal is involved. How have you adjusted and how does Colin adjust?

Margie: Colin is doing fantastic! He has benefited from all the wonderful therapy provided through early intervention at Aspire and is now enrolled in Kindergarten. We are fortunate to be able to be so involved as Colin’s health has been very good. I have tremendous support from Sean. Our other children feel the same and do their part and so this is a family effort. Colin inspires us all and we respond. When I had the tremendous opportunity to present at the United Nations for World Down Syndrome Day a very similar question was asked and my answer then, as it is now, is that Colin leads the way. Each day I see Colin face obstacles that his siblings have never encountered, and likely never will in their lifetime, and he perseveres. He has an innate desire to learn, make friends, communicate and he does all that he can to attain these goals, therefore, our family easily recognizes our responsibility to do the same.

Judith: You’ve become a community outreach leader? What exactly does that mean? What do you do?

Margie: I basically reach out to the community in any capacity possible. As I mentioned, I have presented at different organizations within the Down Syndrome community (NADS, Ups for Downs) as well as for a team of nurses, doctors and therapists. Much of what I do is about raising awareness.

Judith: Tell us about the upcoming Funding Futures event in Chicago?

Margie: It all comes back to wonderful people. It's by and large a community of parents with children with Down Syndrome. These families have become involved in my effort to raise awareness and funds to support this research and we formed a committee and host Funding Futures. The 2013 event will take place at Goose Island in the Wrigleyville neighborhood on Saturday, Oct 26, 2013. Last year we were fortunate to raise over $60,000 for research. How can people support this cause? People can purchase tickets for the event or make a donation. See www.fundingfutureschicago.com 

Judith: Obviously, this is personal, but what is driving this cause beyond the personal for you?

Margie: It is imperative we attain the private funds because at this time, the NIH (National Institutes of Health) is responsible for distributing government funding for research. Currently, the NIH is only allocating $50 per person for Down Syndrome research. For the sake of comparisons, Cystic Fibrosis is allocated $2800 per person. This disparity is threatening our progress, and as a parent this burden falls squarely on my shoulders. Until we gain the support of the NIH, this research is dependent on private funding.

Judith: You mentioned you were a presenter at the United Nations for World Down Syndrome day. That's a prestigious event to be included in. How did that opportunity come your way? Explain the role the U.N. is playing in this area?

Margie: In 2012, the United States for the first time became a participant in World Down Syndrome Day and so DSRTF had the opportunity to present an update on the ongoing research and clinical trials. It was an inspirational day in my life. I had the good fortune to meet advocates and listen to their hopes and dreams, and just how hard they are willing to work to attain them.

Judith: My father died from Alzheimer's disease. I was fascinated to learn there are links between Alzheimer's and Down Syndrome. Explain the links between Alzheimer’s disease and Down Syndrome?

Margie: The APP protein, which is the product of a gene on human chromosome 21, contributes to the degeneration of specific neuronal circuits important for learning and memory. This same neuronal degeneration is also a characteristic feature of Alzheimer’s disease. This gene is on the 21 chromosome and it is naturally duplicated already in Down Syndrome due to the trisomy. As a result, all individuals with Down Syndrome are at risk for the early onset of Alzheimer's, as early as their late 30s. It is critical to fund this research so that the tremendous progress that people with Down Syndrome strive a lifetime to achieve is not met with decline at an early age.

Judith: If people want to learn more about Down Syndrome and the research involved in this issue where should they turn?

Margie: Down Syndrome Research and Treatment Foundation is the largest foundation in the US with the focus on cognition and prevention of early Alzheimer’s disease in Down Syndrome. This mission is to allow for improvement in cognition, learning and memory and allow for more independent lives for those we love with Down Syndrome and the prevention of Alzheimer’s disease.

Judith: We all have people we admire, respect and look up to. Those ideals of admiration change throughout our lives.Who are your heroes today?

Margie: The parents of the children with Down Syndrome from years ago who were told “your son/daughter will amount to nothing and only be a drain on the family."  Instead of heeding the "professional" advice, they walked out of the hospital with their head held high and their heart intact. Also, the parents that I once saw a video of from the first Special Olympics when they walked into Soldier’s Field, into an empty stadium, filled with pride for their child’s efforts and accomplishments. Today, these stadiums are filled with people cheering on our athletes and tremendous celebration. These parents and families paved a way through society that I will forever be grateful for. Of course, the researchers we fund who are striving to help us find ways to help our loved ones. There is plenty of money available for other efforts, such as tests for early detection of chromosomal anomalies, but the commitment of these researchers that DSRTF funds involves a commitment beyond the dollar.

Judith: What is the one thing that has been the most surprising situation in your life with Colin?

Margie: The joy of small things, when your life is forced to slow down and observe, there is tremendous beauty and joy that can easily be overlooked in the rush.

Judith: None of us appreciate the simplicities of life enough. Many people are wonderfully kind and compassionate and then you have a few not so compassionate people, here and there. Any stories you would want to share regarding the day to day of your experiences?

Margie: You are right, some people are less than ideal, but we have met the most wonderful and compassionate people through Colin. Now, it’s funny because we feel that Colin is a filter. His being in our life immediately allows us to filter out the people we have no desire to be a part of and shines a bright light on the many people of true character and love. Colin gravitates towards these people and they to him, it is a natural phenomenon.

Judith: These are tough decisions for people. The financial issues? The daily differences in life? Did at any time you consider not going through with your pregnancy once you knew you were carrying a child with Down Syndrome?

Margie: Abortion, as we all know is a very difficult topic and as a mother of a child with Down Syndrome knowing the abortion rate is 92% I am profoundly saddened to even think of it, but think of it I must. Although, I do not know what goes through any one's mind or soul, when they come to find abortion as the solution, I believe with all my heart that fear is a driving force. Fear can be eliminated with knowledge and good information, because information matters. When I think of the “advice and direction” I was given a mere 5 years ago the only word that comes to mind is barbaric. How can educated people, professionals, be so uninformed? Ironically, it is those without knowledge or life experience that claim to “know” or deem it is reasonable to abort a human life with Down Syndrome. Who can predetermine the worthiness of any life that is not yet lived, or denied the opportunity to live? Was any one of us promised a life without possible difficulty, or an easy path? Perhaps in striving to filter out what we fear makes life difficult - what is also filtered out is “life” in all of its complexities and stunning revelation of true beauty.

Judith: Growing up, what were your dreams and aspirations?

Margie: I guess I would have to refer to a poem I have had on my desk as a point of reference for the last 30 years. My hope is to hit it on one aspect.

Success by Ralph Waldo Emerson

"To laugh often and much; to win the respect of intelligent people and affection of children; to earn the appreciation of honest critics and endure the betrayal of false friends; to appreciate beauty, to find the best in others; to leave the world a bit better, whether by a healthy child, a garden patch or redeemed social condition; to know even one life has breathed easier because you have lived. This is to have succeeded."

Judith: You have a busy couple of months leading to the annual fundraiser, so before you get there what do you and your family do for fun and relaxation?

Margie: We go to the Beach!


Mother and Son


 
Copyright Chicago and Then Some 2013
 
All Photographs Courtesy of the Doyle Family